tag:blogger.com,1999:blog-4908642181059119409.post4178436799060470353..comments2023-09-13T19:50:32.843-05:00Comments on this mare eats oats: our closet walker...mjhttp://www.blogger.com/profile/09141031502595666446noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-4908642181059119409.post-81904541256888197512009-03-29T13:57:00.000-05:002009-03-29T13:57:00.000-05:00I found your blog through kim and ryan wintertons....I found your blog through kim and ryan wintertons. our son has Cerbral palsy and didnt walk till he was 2. now we walk like a crazy drunk solider. but have you looked into getting some afo's or braces on her legs to help with stability. have you tried the early intervetnion program in utah. they come to your house and it is free. <BR/><BR/>if you need numbers or anything i would be happy to help. and if you need to vent with your frusration of them not walking come on over to my blog..nancyhttps://www.blogger.com/profile/16943446751465263123noreply@blogger.comtag:blogger.com,1999:blog-4908642181059119409.post-87486704326620553302009-03-03T10:30:00.000-06:002009-03-03T10:30:00.000-06:00i don't know if in your other posts you had said t...i don't know if in your other posts you had said that you had tried speech, occupational, or physical therapy? These worked for my nephew who had similar issues. a therapist would come to his house and work with him 1-2x a week. I wish I had more suggestions! We all love little Leah!Julie Laughlinhttps://www.blogger.com/profile/12913535893281244508noreply@blogger.comtag:blogger.com,1999:blog-4908642181059119409.post-88327612011409164122009-02-28T19:25:00.000-06:002009-02-28T19:25:00.000-06:00I have a friend who has a daughter who is almost t...I have a friend who has a daughter who is almost two, not walking, and has low muscle tone too (though hers is more extreme..she has trouble eating). You are not alone!Rob and Marseillehttps://www.blogger.com/profile/13723166385445493627noreply@blogger.comtag:blogger.com,1999:blog-4908642181059119409.post-81686105589257252282009-02-22T15:43:00.000-06:002009-02-22T15:43:00.000-06:00although i don't always comment, i reg check l...although i don't always comment, i reg check leah's developmental updates & am so excited for you to see progress lately!! good quote from our olympic-themed ywinexcellence last fall from yw advisor who just barely rec'd medallion for first time=slow & steady wins the race!:) keep the faith & know you're loved by cousins!!Rebecca Parkerhttps://www.blogger.com/profile/04388236923425075995noreply@blogger.comtag:blogger.com,1999:blog-4908642181059119409.post-77151173862009061322009-02-21T20:08:00.000-06:002009-02-21T20:08:00.000-06:00Wow, that picture of her crying is hard to look at...Wow, that picture of her crying is hard to look at. I usually tried to leave the room when Simon had blood drawn because it happened so many times. She is such a cute little girl and I hope that she can keep working on the walking - five steps - that is awesome! One of my friends emailed me while we were in the hospital and told me their family motto was "We can do hard things." I was really glad she shared that with me.rachelhttps://www.blogger.com/profile/13536430796369238569noreply@blogger.comtag:blogger.com,1999:blog-4908642181059119409.post-58204848606429066992009-02-21T16:44:00.000-06:002009-02-21T16:44:00.000-06:00We've had a lot of blood work and urine tests...an...We've had a lot of blood work and urine tests...and it all is just so sad. It never gets easier. As for the urine bag -- it should have some adhesive so you can stick it on her and she pees in the bag. She just wears it under her diaper and you check it periodically. The trick is getting the bag off. You have to do it slowly and it's not all that comfortable. Walking? We are trying to get Sammy to walk holding my hand. We have the reverse problem I suppose. She doesn't want to hold on to anything, but because she's so stumbling and all over the place, it's dangerous to not have her hold your hand when we're out. So...this is what was recommended to me by our PT, it's a different problem than yours, but it can still work -- a dish towel. It's the same trick as wth the pen (except if she falls a towel can't poke her eye or something). It's the same concept. With the towel, each day you just hold it further and further away. The towel will get to the point where it sags, so perhaps that's good with Leah...it won't be so dramatic when you eventually let go. I'll ask our PT if she has any suggestions for you when we see her this week.Jennyhttps://www.blogger.com/profile/13101399559614616079noreply@blogger.comtag:blogger.com,1999:blog-4908642181059119409.post-37566115032842014442009-02-20T22:23:00.000-06:002009-02-20T22:23:00.000-06:00Hooray! As thoroughly horrible as your experience ...Hooray! As thoroughly horrible as your experience has been with all of the doctors and blood tests etc, I am so excited to hear that she is making awesome progress. Five steps is major, and though she hasn't repeated this new found skill yet, I am sure it will be done again soon...give her another weeks or so. Again, so sorry to hear about the blood test, but I think you are doing the right thing! :)Alyshahttps://www.blogger.com/profile/00343807910281759067noreply@blogger.comtag:blogger.com,1999:blog-4908642181059119409.post-29079564292586143672009-02-20T20:03:00.000-06:002009-02-20T20:03:00.000-06:00Does the bag have sticky stuff on it? Shoot me an...Does the bag have sticky stuff on it? Shoot me an e-mail and I can (hopefully) walk you through the pee trial!LTChttps://www.blogger.com/profile/15641849622123707964noreply@blogger.comtag:blogger.com,1999:blog-4908642181059119409.post-3342986954640268012009-02-20T18:16:00.000-06:002009-02-20T18:16:00.000-06:00First off, poor Leah for having to get poked so mu...First off, poor Leah for having to get poked so much!! That picture just breaks my heart. Second, YAY Leah for walking on your own!! AWESOME!!!caroleehttps://www.blogger.com/profile/09309445095616851117noreply@blogger.comtag:blogger.com,1999:blog-4908642181059119409.post-7614438266180097112009-02-20T17:48:00.000-06:002009-02-20T17:48:00.000-06:00I totally sympathize with the blood drawing. Stell...I totally sympathize with the blood drawing. Stella had to have some tests run when she wasn't even two yet and it is soooo hard to see them cry like that.AJhttps://www.blogger.com/profile/11131323623056740343noreply@blogger.com